The Centre François Baclesse aims to integrate the patient voice ever more fully within its institution. It is taking a further step forward by recruiting a patient partner.
A commitment to innovative co-construction
Advances in medicine and the acceleration of medical research in oncology have brought major breakthroughs that benefit all patients. These advances have given rise to a great deal of expertise and a degree of technicality that can sometimes seem far removed from the day-to-day lives of patients. The patient has always been at the heart of care at the Centre François Baclesse, and today our ambition is to go even further by creating a real partnership.
What is a partner patient or expert patient?
The expert patient is a person with a chronic illness who, over the years of living with the disease, has developed a detailed knowledge of his or her illness on a daily basis. This is what is known as "lay" expertise, a non-scientific experience developed during the course of living with the disease.
Caregivers may know all there is to know about disease management, but patients know what it's like to live with the disease. The Centre Baclesse wishes to integrate this knowledge to enrich its own and improve care.
The patient-partner is both a player in his or her own health and a resource, not only for his or her peers, but also for healthcare professionals.
Making healthcare democracy more than just an idea
The Centre Baclesse is convinced that recruiting a patient partner is a way of improving its practices.
By integrating an expert patient, the Centre intends to offer patients and the institution new interactions:
- Identifying a resource person to help understand the care pathway
- Informing working groups from the user's point of view
- Complementing the knowledge of professionals
What's the difference with the users' commission?
The Users' Commission includes members of associations appointed by the Agence Régionale de Santé, who represent users of a healthcare facility. Users' representatives from associations are not patients of the facility.
The Users' Commission deals with patient rights, respect for dignity, information and consent. It can be contacted directly by users.
What will the future patient-partner of the Centre Baclesse be doing?
Activities with professionals
- Passing on experiential knowledge to care teams and co-hosting meetings with patients and their families.
- Participate in discussion sessions with healthcare professionals to help build and/or be consulted on a specific topic (care pathways, risks associated with care, etc.).
- Help design and test innovative approaches to improve the quality and evaluation of care.
- Share your experience to enrich the plant's improvement dynamic.
- Participate in the evaluation of professional practices.
Patient-related activities
- Discuss life issues that patients don't always dare raise with caregivers, and provide relational support based on the patient-partner's own experience.
- Support patients in regaining control over their lives, complementing the actions of the care team.
Skills required
- DU Formation à la mission d'accompagnant de Parcours du patient en Cancérologie or equivalent;
Full details of the job offer and how to apply can be found by clicking on this link: UNICANCER - Patient Partner M/F
